June 2nd

Today is my daughter’s 7th birthday. It is also the five year anniversary of my Ehlers Danlos diagnosis. I had the best intentions when I started this blog months ago, after deleting my original blog in a fit of “If I don’t talk about it I don’t have it”. Turns out that doesn’t work so […]

The Struggle Is Real

About that “struggle” I mentioned in my last blog post four months ago … yeah that bitch is real. Apparently I’m the human equivelant of a Rubix cube that just when you think you’ve got it figured out you realize its far more complex then you originally thought. That “brain fog” – such an unassuming […]

Life in my tornado

  Per usual, my life has taken strides with the same grace as the Tasmanian Devil. We have moved into our own place, albeit renting , it’s still our own. Finally freedom to rule my domain with all the color schemed, pattern specific tendencies my OCD requires. This has helped my depression tremendously. For the […]

No Explanation Needed

One of the frequent struggles with invisible illness is that often times you don’t ‘look’ sick, you don’t appear to fit with in the parameters of what is generally considered an ill person. You won’t get the common courtesy’s , the much needed referrals or even a sympathetic ear. Instead you get a judgmental look […]