Treason – When The War Isn’t Over

My ovaries are being assholes. I bought into the whole “Hysterectomy will change your life for the better” sales pitch two years ago, and while the pathology report on my uterus confirmed it was medically necessary , and I had been in constant pain and misery since starting my period at 12 years old, what […]

June 2nd

Today is my daughter’s 7th birthday. It is also the five year anniversary of my Ehlers Danlos diagnosis. I had the best intentions when I started this blog months ago, after deleting my original blog in a fit of “If I don’t talk about it I don’t have it”. Turns out that doesn’t work so […]

The Struggle Is Real

About that “struggle” I mentioned in my last blog post four months ago … yeah that bitch is real. Apparently I’m the human equivelant of a Rubix cube that just when you think you’ve got it figured out you realize its far more complex then you originally thought. That “brain fog” – such an unassuming […]

Life in my tornado

  Per usual, my life has taken strides with the same grace as the Tasmanian Devil. We have moved into our own place, albeit renting , it’s still our own. Finally freedom to rule my domain with all the color schemed, pattern specific tendencies my OCD requires. This has helped my depression tremendously. For the […]

No Explanation Needed

One of the frequent struggles with invisible illness is that often times you don’t ‘look’ sick, you don’t appear to fit with in the parameters of what is generally considered an ill person. You won’t get the common courtesy’s , the much needed referrals or even a sympathetic ear. Instead you get a judgmental look […]

Complex Medical Conditions Do Not Equate Psychological Illness or Negligence: A Personal Experience that Parallels the Justina Pelletier Case

For many people becoming a parent is an inherent and indescribable feeling that subconsciously transforms you into a fiercely protect caregiver. When your child becomes ill your natural inclination is to seek medical attention and abide by the doctor’s orders. However, if the illness is caused by a complex medical condition, sometimes the answers are […]

Return To Sender

Less than 48 hours until my uterus gets returned to sender for defective equipment . I’ve been rummaging through the inner sanctum of my feelers and dusted off these things called ” feelings” . spoiler they’re confusing , massively uncomfortable and exhausting . Kind of like what happens when I binge out of the vending […]